Walk This Way

photo: Kate Ter Haar cc

It's exciting to see the enthusiasm among teens at my sons' school for the upcoming Autism Walk. My only regret -- and it's a biggie -- is that the walk supports Autism Speaks, an organization that's garnered a less than ideal "financial" score from the Charity Navigator watchdog group; has repeatedly demonized autistic children in its "awareness" campaigns; and, one could argue, seems to focus more on scaring people than tangibly helping to improve life for children and families experiencing autism.

If I could wave a magic wand, I would transfer at least part the Autism Walk funds to the Doug Flutie Jr. Foundation for Autism, which actually provides grants to families -- in some cases through Joey's Fund, honoring a beautiful little girl killed in the 2012 Newtown tragedy -- for medical bills; advocacy-related legal fees; therapies; mainstream activities like art, music and horseback riding that can be extremely beneficial for autistic children and teens; and other expenses that challenge middle- and especially lower-income families.

While it may be too late this year, what about encouraging our fired-up kids next year to organize a smaller but more helpful (to real-live people with autism) walk or other event benefitting the Flutie Foundation? Alternatives to Autism Speaks can be frustratingly hard to find, but this organization -- at least as of spring 2014 -- seems to fit the bill.

Helping Out, Hanging Out

(image: plainfield.patch.com)

Greeting friends in the hall: A minor matter for most teens, but for those with autism and other disabilities that affect social interaction, it can take practice. And who better to practice with than typical peers? Adults "don't have the same know-how or the insider information" as peers, said speech-language pathologist Christopher Spiel of the Peer Communication Group he started two years ago at Plainfield East High School in Illinois.

Teacher-recommended students who have a solid academic record and are known as good role models can trade study hall time for a chance to work with their special-needs peers twice a week, facilitated by Spiel and a social worker. Volunteers go through a two-hour training, and the group focuses on trust and relationship building before tackling specific skills. "Special education students [are] self-conscious and ... don't like to show their weakness," Spiel told Plainfield Patch. "We spend a lot of time to develop trust."

Once a month, the students kick back together at Hang Time Club, which Spiel personally funds to give the special-education students a chance to snack, play games, and just enjoy people outside of their families.

A comment from peer helper Myles Walters is filled with the kind of natural sensitivity and respect that teens can bring to their peers with challenges: "I understand these kids are just like us, but they may not know these things."

The benefits go both ways. "We are all clicking." Walters added. "It's a joyful time."